Tuesday, July 24, 2012

Meeting Llama Tsultrim



On a smokey, sunny morning, I drove and hour and a half north on Hwy 101 to Rangjung Yeshe Gomde, a Tibetan Buddhist meditation center in Leggett. I had an appointment with Llama Tsultrim Sangpo, a buddhist monk from Tibet who had agreed to talk to me about my daughter's illness.

I've read many books written by buddhist teachers and philosophers and spent several years following the teachings of Thick Nhat Hhan and Pima Chodron, but I have never spoken with a Monk or Nun, let alone a Tibetan Llama. What would he be like? How should I greet him? Was I appropriately dressed in my slacks and long sleeved blouse? I knew it was rude to flash your boobs at a Monk.

The retreat center is just off the highway, tucked into the hills that are thick with trees and wildlife. I was greeted by a man who seemed to be the caretaker and he directed me to the retreat's center, a large kitchen and dining hall where Ani Marsha was preparing lunch. Ani Marsha gave me directions to the cottage where Llama Tsultrim waited. Driving on the bumpy one lane road through the hot silence of late  morning, I smelled the dry grass as it crackled in the sun. At last I reached the cottage, a one room studio in the shade. The Eel river gurgled several feet below and two jay birds yelled at me as I parked.

The front door was opened by a man wearing rust and orange robes with a pair of glasses pushed up on his head and a cell phone in his hand.

"Hi, I'm Terena," I said.

He nodded and said, "Come in."

I remembered to take off my shoes before entering. He nodded toward a corner of the room and told me to sit down. Did he mean sit on a chair, at the table, or on the meditation cushion? I chose the cushion, but then thought maybe it was his cushion and that was rude. I was too embarrassed to get up and change to a chair.

He handed me a piece of paper where instructions on how to use the phone were written. "Do you know what this means?"

After helping him with the phone (which still wouldn't work right), he said he'd be back. He was trying to call the interpreter because although he understood English, he wanted to make sure I understood everything he was saying. He walked outside and left me alone for a few minutes. He definitely wasn't what I expected; instead of an elderly Tibetan monk welcoming me into his room filled with incense and bells, Llama Tsultrum was about my age.  He struggled with a cell phone just like any other person would and his room was as ordinary as any one room cottage could be.

He returned and the interpreter joined us.  The three of us sat on meditation pillows around his altar and then he asked how he could help.

I told him about my daughter's illness and that she would eventually die. "And there's nothing I can do to help her or cure her. Watching her suffer is breaking my heart and I can't breath from the grief and anger I feel. I can't meditate because my mind runs around in terror and the only thing that helps is if I stay busy. I know what I'm feeling is natural and I'm not asking to escape suffering. I'm asking for help so I can bear the suffering and be strong to help my daughter through this."

The interpreter repeated my words in Tibetan and Llama Tsultrim nodded as he listened. Then he spoke. I've never heard Tibetan spoken and it is a beautiful, soothing language. It sounds Asian, but doesn't have the same high notes and short clips of Chinese or Japanese. I couldn't understand what he was saying, but I loved listening to the low melody of his voice and felt assured by his thoughtful responses.

He spoke about the love of a mother for her child and how powerful that is, how the bond between a child and mother is stronger than anything in the universe. He told me the depth of my grief is directly tied to that bond because I love her so much. But the time will come when I will have to let go so she can go move on to her next life. However, I can help her during the process of her death and eventual rebirth by staying devoted and loving her with all my being. A mother's prayers for her child are important in helping the child go on to a fortuitous birth that will bring her closer to enlightenment. But yes, the pain is great and I need to care for myself as much as possible.

I spent an hour with Llama Tsultrim, mostly listening to his words as spoken through the interpreter. As the time passed, I felt calmer and more centered. Here was a wise teacher who listened with his full attention, who cared deeply for me and my child (a child he's never met), and who offered practical advice on how to bear such terrible grief. When I asked for specific instruction to help me find strength, he taught me a new meditation technique. Llama Tsutlrim asked me if I had a relationship with a deity and I explained that I find strength and wonder in the natural world. He encouraged me to meditate in nature and continue working with plants. He also told me to think if an emotion or action is "useful." He didn't use terms like "good" and "bad" he asked, "Is this anger useful?" Just asking myself that question now and then helps ground me when my emotions become a whirlwind in my head. I still feel them, but is getting lost in them useful? Is getting drunk every night useful? Is wanting to yell at my husband because he isn't grieving the way I want him to useful?

The greatest thing I took away from this was the understanding that I could not get lost inside my own grief; my daughter needs me too much. It is natural to feel sadness and rage and I shouldn't suppress or ignore it. But I can't let the grief be the only thing in my life. She is the one going through decline and the one who will eventually die. I need to help her so she won't be afraid.

Even writing that makes my bones ache with sadness. The look in Llama Tsultrim's eyes told me that he knew how great my pain was and how impossibly hard this journey will be. There was so much kindness and compassion in one small man and just sitting with him in that little cottage by the Eel river made me feel more peaceful than I have in a very, very, very long time. The feeling lasted several days.


Monday, July 9, 2012

Recognizing Blessings

The trouble with depression and fear is that they bury anything remotely positive in a bog of thick gloom. The little glimmers of hope vanish as the darkness thickens. But occasionally, something beautiful will appear and remind you that life is still sweet.

Like your daughter finally getting into the swimming pool at school and having fun.

A plant you thought you'd killed struggling back to life and blooming with tiny pink blossoms for the first time.

Texts filled with hugs and love from friends who live far away.

The people who drive an hour just to take your daughter out for ice cream.

Your mom who offers to mop your floor and iron the pile of work shirts you've been ignoring.

Comments from people you've met via blogs; people you've never met, but who offer support anyway.

The social worker who keeps trying to find you more help despite the budget cuts.

The dog who demands a walk in the sunshine and won't let you just lie in bed all morning.

All the varieties of veggies and fruits at the farmer's market this time of year. The taste of fresh organic strawberries.

Your husband who shows you a thousand times that he really does understand and really is there, even though it's sometimes hard to see.

Hearing a new song on the radio that makes you want to cry and dance at the same time.

Godiva chocolate.


Tuesday, July 3, 2012

How would you feel if your worst fears are confirmed?



Whenever we go to Stanford for a medical appointment, we stop at the Disney Store so Queen Teen can indulge her obsession with all things Disney. Ice cream isn't enough any more, instead Queen Teen gets to buy a new doll or shirt or trinket, usually related to a Princess.

My Disney Store is called Godiva... as in Godiva chocolate. There is a Godiva store at the Stanford Mall so my treat after the long drive and worry is to blow thirty bucks on a box of delectable truffles. I would spend so much because we used to only go to Stanford three times a year. Now we'll be going more often, so I'd better cut back on my Godiva splurge before I gain 40 pounds and max out my credit card.

However, we won't be cutting back on Disney.

Queen Teen had a genetics appointment last week with Dr Enns, the leading expert on Mitochondrial Disease in the U.S. We've been working with him for 5 years and he's put her through every test he can think of to confirm whether or not she has Mito. All of the tests come back negative. The mitochondrial sequencing test showed an anomaly in 100% of her mitochondria, but this is more likely a familial trait, not the cause of her illness. This time, I was the one who had to get blood work (Queen Teen loved that) so they could determine if I too have the anomaly. This would confirm that it's just the way our mitochondria are made.

Dr. Enns was alarmed at how rapidly Queen Teen has lost ground, and it felt reassuring that the doctor is just as worried as we, her parents. Reassuring isn't the right word. You know that feeling when you go to the doctor convinced that something is terribly wrong with your child, only to have a condescending physician pat you on the head and tell you not to worry? It's infuriating. Then you go to a different doctor and that doctor takes your fears seriously and immediately gets to work trying to help your child. You feel calmer and reassured that the doctor cares about your child.

But how should I feel when the doctor confirms my worst fears about my daughter, tells me to trust my intuition without actually giving a prognosis, and talks about aggressive tests to find the right treatment to improve her quality of life? We're not discussing cures or longevity, we're discussing symptom care and slowing down progression.

Dr. Enns and her new neurologist want a muscle and skin biopsy, and we agree, even though this means anesthesia and minor surgery. While she's out, they will draw more blood and try to squeeze in an MRI. He has recommended a newer Mito-Cocktail and is recommending that she be part of a medication research trial.

I can't believe I'm going to put my kid on experimental medication.

It will take some time to get the appointments organized (she also needs to see a cardiologist and respiratory specialist, as well as the surgeon and several doctors on the medication committee) and I'm so thankful that Dr. Enns' assistant is dealing with that. Hopefully, we'll get this done before school starts August 20.

Queen Teen will be getting a lot of Disney swag this summer, and I'll probably be eating way too much chocolate. 

Sunday, June 10, 2012

I was drowning in paperwork, so my husband rescued me.

On Sunday, I spent five hours of a beautiful, sunny day locked up in my room surrounded by piles of SSI forms, pay-stubs, bank statement, savings statements, insurance statement, medical reports, old IEP's, current evaluations, CCS authorizations, Regional Center authorizations, receipts, artwork from my daughter, articles I wanted to read but never managed to, advocacy information, special education legal guides, a few Johnny Depp pictures, and paperwork filed under "miscellaneous." My entire room, from floor to desk to bed, was covered in white and beige paper.

I was preparing for our annual Social Security interrogation... I mean the "Representative Payee" interview. Every year I need to show Social Security that I am wisely using the money they give my daughter for her care, while also showing we need the help and that I'm not trying to screw the government out of benefits we don't need. I have to justify every expenditure and keep track of every penny, showing bank statements and pay-stubs for an entire year. I imagine it must feel a lot like preparing for a deposition.

Since I had to organize the paperwork for that, I decided I might as well tackle the whole mess. My filing system of throwing paper behind the bed was no longer working. Typically, I keep excellent records, but this last year has been a tad more hectic than normal, so in a rush I'd toss documents into a pile to put into the filing cabinet "later." Later had arrived, and I plowed into the pile with determined dread.

Two hours in, I was in full blown panic; my body was shaking and I couldn't make sense of the forms I was reading. Is this my bank statement, or Queen Teen's? What year is it? How far back do I need to go for pay stubs? Is this an original or a copy? How long do I have to keep this shit? The filing cabinet was packed with every important document since Queen Teen's birth and here was more needing to be filed. More and more and more and it just kept coming and I had to keep track of it all and if I lost anything it seemed to cause problems but how much more could I cram into the filing cabinet and OMG!

My husband entered the room. "Honey."

I jumped. "What?"

He looked at me and then the pile, asked a quick question, then left. Smart man.

After another thirty minutes I walked out of the room needing to escape the claustrophobia of paperwork. My husband handed me a glass of wine and said, "Come outside."

"I need to finish filing."

"Just a minute. I want to show you what I'm doing."

"You mean you want me to help you." I scowled at him.

He shook his head and said, "I just like the company."

I sighed and resigned myself to going outside to look at the fence he was repairing. We chatted about lattice and rotten wood and how many posts he had to replace. I looked at the flower pots he bought earlier that day and remembered the succulent still sitting on my kitchen window. It would look lovely in that pot. Soon, I was happily potting the little succulent and taking it to its new home in the back garden.

Oooh, my husband is good. All he had to do was get me outside near my plants to help me calm down. Just touching a little dirt and smelling the damp soil after I watered made the panic leave my body. The sun was warm but not too hot and the breeze smelled like jasmine and old wood. I smiled at my husband who was busy tearing out old boards from the rotting fence.

Smart man.

Wednesday, June 6, 2012

A Fascination with Terrariums


As I've mentioned in an earlier post, I've been having trouble writing lately. Instead, I've been drawn to the delicate beauty of terrariums. A tiny plant; some sand and rocks; a bit of stone and glass; a surprise of feather or bone. I arrange the various items to decide which plant will go with which shell and the shape of the bowl, then start arranging. It's like creating living sculpture. My husband likes to call them, Terenaiums (a mix of my name and the word. since I'm the one making it, why not?

Here was my first attempt:






A tall, square, glass vase filled with rock, moss, soil, and then two cuttings from the plant that was tangled in my kitchen window (which I can't remember the name of now).








I also added shards of sea glass
I'd collected at the beach for more sparkle.




I made this one using the glass bowl my sister-in-law had given me and an abalone shell Rick and I found at the beach.


With the addition of sand and smooth glass beads, it reminds me of water lapping on shore.

This one I made for my husband.


If you look closely, you'll see the glow in the dark UFO surrounded by bits of reflective debris.

Soon the plants will grow around the crash-site until all traces are hidden (unless Moulder and Scully get there first).

I am obsessed with terrariums now; I see little bits of plant life, wood, shells, coins, figurines, chicken bones, rocks, old forks, antique buttons and left over party favors and instantly wonder what kind of terrarium I could make. Looking at plants, I try to decide if it could live surrounded by black sand in a glass jar. I've always been into plants, but now I am making artwork with plants and random bits of interesting things I find lying on the ground when I walk.

I bought a great book called Terrarium Craft, by Amy Bryant Aiello and Kate Bryant, and it is fabulous. An inspiring book with great ideas and gorgeous photography. Includes step by step instructions on creating terrariums in which your plants will thrive. 

I'm hooked, so my husband built me new shelving in the kitchen to display my creations. And don't be surprised if everyone I know gets a terrarium someday. They'er just so fun to build. And a soothing break from working with words all the time. I'm still using good creative energy, but not in a focused cerebral way. A perfect break for my overloaded brain.

Feeling better? Good, that means we can smack you around more.



Usually, meetings with our Regional Center worker are helpful and positive. Our worker comes to the house and the two of us plan Queen Teen's year. What activities would she enjoy? What are her current challenges and what kinds of support does she need? What kinds of support do I need to continue caring for her? What do I dream for her future and how can the Regional Center support those dreams? What does she dream of doing when she's grown up and where would she like to live?

But this time, the meeting was far from positive. 

It began in the usual way; we discussed Queen Teen's current issues and her changing medical status and then talked about some of the challenges she's experienced at school. We went over her past I.F.S.P. (individualized family service plan. like an IEP, but broader.) and updated information. I signed permission forms for the Regional Center to be able to talk with Queen Teen's doctors and other service providers. And then, I told him that that Queen Teen was approved for Protective Supervision from In-Home Support Services.

"She was?" he said with raised eyebrows.

"Yes. I applied like you suggested and she was approved," I said.

"Oh. That might be a problem."

"Why?"

"Because there's a new ruling about Protective Supervision that I just found out about this morning. If you are getting Protective Supervision hours, you can't get respite."

"What?"

"I'm sorry. I just found out about it. You can't have respite and Protective Supervision at the same time. The State considers it a type of respite. I'm sorry."

I felt the air leave my body as I slumped back into my chair. "How is Protective Supervision even remotely the same as respite? I'm working. I'm taking care of her around the clock. We needed more hours because her needs have increased. This isn't respite. Respite is the only time I get a break."

"I know, and I agree. But the State doesn't agree with us. The new ruling states if you have Protective Supervision then you can hire someone else to provide respite."

"Who am I going to hire? I haven't been able to find anyone to watch Queen Teen after school. Who is going to watch her other than our highly trained respite worker?"

"I'm sorry."

"So what the hell is the State of California going to do with all the parents and caregivers who end up having nervous breakdowns because they don't get breaks anymore?"

He said he was sorry again. Then he told me about more cuts to services (which are so annoying and stupid I won't bother going into) and informed me that Queen Teen can never live in a group home because she isn't ambulatory. Her choice is to live with me forever, or in a nursing home. 

Thanks to massive budget cuts, gone are the days of the friendly and supportive I.F.S.P. Instead, the Regional Center is cutting costs by forcing more of the care and support of their clients onto families and other agencies, which are also cutting care. Basically, Queen Teen and I are screwed. As she becomes more medically fragile her daily care and support will land primarily on me. 

What are kids without a mom like me going to do when all of their services are cut?

I was furious and I know our worker was embarrassed; he left as quickly as he could. After pouring myself a glass of Pinot, I went outside into the yard and cried in my vegetable garden. No respite? No support? No days off... ever? I am not lucky enough to have a large and supportive family to help out, nor are many of our friends able to step in and watch Queen Teen for a few hours. I am exhausted, terrified about the future, and overwhelmed by Queen Teen's increasing needs, and now I am totally fucking alone. 

That's how I felt for a few days. Then I did some research, and the more I researched the ruling (which I found on-line) and dug deeper into some of the other cuts our worker talked about, as well as the "never live in a group home" statement, I realized that the Regional Center is being reactionary. Yes, the cuts are bad, and I understand that they are operating on a budget that will barely pay their electrical bill, but walking into my home and telling me everything Queen Teen can't have or will never have is unacceptable. It's called an Individualized Family Service Plan for a reason: individualized. There is no way I'm giving up all the supports this family needs to help Queen Teen thrive without a fight. 

But damn, these last three months have left me bruised and emotionally limping. Do I really have to keep fighting like this for the rest of her life?

Friday, June 1, 2012

Say What?

One of the blogs I love to read is called "Say What?" The writer is a mom who's child has special needs, including deafness. Her writing, stories, and photos are great. Plus, she provides really good info, like this:

http://saywhatmunchkins.blogspot.com/2012/06/writing-frenzy-hearing-aid-grants.html

This is a link to a blog post about grants to help pay for hearing aids, and a video on putting in a kid's hearing aids. Just had to share it.

Tuesday, May 29, 2012

What is Strength?

It's the end of May. The blossoms have disappeared and soon there will be a fresh crop of cherries on our tree. My garden is struggling to defend itself from earwigs and caterpillars, but inch by inch it grows and thrives. Queen Teen is back in school half days and this morning she rode the bus, happy to once again sit with her best friend in the front seat. And very slowly, I am regaining a little of my balance. That balance is delicate, but strengthening. Day by day, I feel my breath return to my body and the shaking in my hands has stopped. I'm not perched on the edge of my couch ready to leap into action at the first sign of trouble from Queen Teen. My teeth hurt from clenching my jaw too tightly for months and there are much bigger bags under my eyes, but overall, I am stronger.

When Queen Teen got sick in early March and her health quickly declined, it felt as if I'd been kicked in the gut and thrown to the ground. Frantic became the norm as I struggled to take care of her and deal with her new challenges, while also working in my first year as a teacher and coping with "IEP season." Forget writing, I didn't have the strength to do anything more cerebral than watch stand up comedy on Netflix. I knew I had to hold it together, and the funny thing is my depression improved with the immediate crisis. I didn't have time to be depressed, my daughter needed me.

Is that what strength is? Putting your own needs aside for the benefit of another? Perhaps, but when I began to have dizzy spells from lack of sleep and nutrition I realized being strong is much more complicated than having the ability to calm your child after she's thrown up again in the middle of the night. Knowing how much you can give, and what you need to do for yourself so you can continue to give, seems to be an important part of strength. What good is mental strength if your body is exhausted, or vice versa?

As Queen Teen's health worsened, I watched the people around me fall apart too. This made it even more imperative that I stay strong, because I honestly felt that others were unable to be there for her. Funny, I don't blame them. The first weeks of this crisis were terrifying, and some people just can't face the idea that a child might die. As others withdrew, I did too, deciding it was better to just focus on Queen Teen's needs and ignore my own.  But now that the weeks have turned into months, I understand how important it is to surround myself with people who will be there, no matter what. And many people have stepped up; friends who live far away have sent flowers and encouragement and little gifts to Queen Teen to keep her spirits up. My boss has been wonderful. I'm basically still on probation and have had to miss a lot of work to take care of Queen Teen, but my boss says, "Family comes first."

The second ingredient of strength: a support team. But before I can build a stronger team, I need to understand what my needs are beyond just taking care of Queen Teen; what do I need to thrive, be healthy, mentally strong, and balanced?  What are my boundaries? I've decided to surround myself with people who will stand by Queen Teen no matter what may come and dump the people who can't deal with her illness: that includes family. I will not feel guilty for setting boundaries. Guilt is a strength stealer.

Queen Teen has shown me the third major component of strength: laughter. Despite being sick, hospitalized, run through invasive tests and looked at by more doctors than she can comprehend, she continues to smile. She fights every day for her life, and will not give up easily. She is able to find joy everywhere and under circumstances that would cripple a Viking. She cracks jokes easily and when she laughs everyone around her has to smile. Where does that ability come from? She is able to stay right here, right now, and not worry about next month or next year. Yes, I know it's easier when you're not the person tracking down doctors, filling out forms, and planning for the long term, but she is the person who lives with the disability. I can escape it for a precious few hours or a weekend away. For her, there is no escape. Instead of letting that reality destroy her, she keeps fighting, and laughing.

A little bit of laughter and searching for the tiniest spark of joy in what seems to be a tragedy can create strength when I'm at my lowest. I work in my garden and watch the tiny plants turn dark green in the sunshine. Taking a deep breath, I smell the dirt as it tumbles through my bare fingers. The hummingbird who won my feeder through hard battle with at least four other hummingbirds zips over my head. Queen Teen yells, "Mom!" through the back door. "What are you doing?"

Gathering strength, I think.





Sunday, April 15, 2012

Second Easter in Hospital



Queen Teen has had two Easter baskets from Lucille Packard Children's Hospital, which is two baskets too many. The first Easter we spent there was after her feet surgery when she was 11. The second was this past Easter.

We finally heard from the neurologist who wanted her admitted to the hospital immediately for tests, so we dashed down to Stanford and spent three days there. Queen Teen was low on glucose and electrolytes, but a couple days of IV fluids brought the color back to her cheeks. Our new neurologist is excellent and I have a lot of faith that he'll be able to help us sort out the mystery of Queen Teen's disorder.

Disorder. Syndrome. Why can't I call it a disease?

We're home now, waiting for the results of all those tests, including an EEG to check for possible seizures. Her strength is poor and stamina worse, but she's slowly feeling better (I can tell she's feeling better because she's getting bossy again). Eating is still tricky and some days she has trouble swallowing juice. Other days she can eat Mac and Cheese with gusto. Just like everything about her neurology, her symptoms come and go. She's still not strong enough to go to school a full day, but maybe in another few weeks? Time will tell.

That's always the answer: time will tell. What will happen next? Time will tell. What does she have? Time will tell. What can we expect? Time will tell...



I found this great site that explains what Queen Teen has: What is Mitochondrial Disease? The United Mitochondrial Disease Foundations is an advocacy and resource organization which also raises funds for research. With a long list of possible Mito diseases, why is Queen Teen such a mystery? Why can't we discover her disease's label?

And why do I need to know so badly now?

I could lose my daughter; I know that now. Am I strong enough to go through this with her, to be there for her no matter what may come?



Monday, April 2, 2012

The possible syndrome roller-coaster.



Well, here it is: the possible syndrome roller-coaster. It's the exciting, heart-pounding, emotional ride in which you get to worry incessantly about your kid while doctors hunt for answers, and then after a fever pitch of panic, you get the 1000 foot drop straight down when all the tests come back "negative."

What's causing your child's illness? It could be this or that or this other really awful thing. But don't worry. We'll run all these tests which will give us answers. Just be patient.


Huh, that's odd. All the tests came back negative. Gee, I really thought it was going to be this really awful thing. She has all the signs, but the tests are negative. Hmmm... you know... it could be this other really awful thing. We should run some tests. 

We've been riding this coaster for fifteen years. We find some balance for a while, until either Queen Teen shows some new sign of a degenerative disorder, or a doctor says she "might" have this thing, and there's a new test he'd like to run. And so we climb back onto the roller-coaster, strap in, and hope for answers.

We still don't have any answers. After years of hunting, we had made peace with that. Not knowing meant the future was still wide open. She could plateau, learn skills, gain strength, and eventually have a life of her own. Maybe she could live with a friend in an apartment with support and find a job she enjoys. She could fall in love. Not knowing what would happen meant we could pretend that everything would be fine for a while longer.

But now, we need to know.

Three weeks ago Queen Teen started gagging on food. It got so bad she couldn't eat anything solid or textured. She's been living on Ensure and yogurt. I took her to Stanford for an emergency gastroenterology appointment where they ran a bunch of tests. The good news is they didn't find anything structurally wrong, which means she's safe swallowing and won't aspirate on her food. The bad news is it means it's probably neurologic. There isn't a cure for that, or an easy answer. So now we're waiting for an MRI and neurology appointment, hopefully this week. In the mean time, we wait. And worry.

We knew her condition was degenerative, but without a real diagnosis it's impossible to predict what degenerative would look like. I figured it meant she would eventually be unable to walk or her hand tremors would get worse. We could manage those. But not be able to eat? How do you deal with that?

It's hard not to think the worst. This is my child, and I feel fucking helpless just watching her suffer while waiting for the phone to ring. No matter how busy I try to stay, or how much I practice mindfulness and "stay in the moment," the fear crawls up my spine like a hungry tarantula. This roller-coaster is a bitch.

I don't know what will happen now. Maybe her eating problem will disappear on its own. She could wake up tomorrow hungry and eat a scrambled eggs without any problem. The MRI might not show anything at all. This could be just a weird thing that will go away in a few weeks. It's happened before; her hand tremors were terrible for a while and just as suddenly, the tremors improved. Why? They still don't know.

But whatever happens next, this is a reminder of just how fragile Queen Teen really is.

 Strap yourselves in kiddies, it could be a long, bumpy ride.